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Friday, December 20, 2013

Preschool starts in February!!!!

Jo Jo's first day of preschool will be February 10th 2014!!!

Today Jo Jo had a evaluation at Rockland Preschool and he did a great job. They were really impressed with his attention span and being able to follow through with activities and transition. That's my boy!!! He is such a good little boy. Thank you to Early Intervention and ABA Therapy!!! Without these services Jo Jo would never have been able to complete the evaluation.

During the Evaluation I had to fill out more paperwork. It never ends! Today I had to fill out a sensory processing packet, a general information packet, and another evaluation packet. It becomes extremely repetitive and annoying with all the paperwork. 

We also got to visit Jo Jo's classroom and meet one of his new fellow student's. He was adorable and couldn't wait to play with Jo Jo, and Jo Jo could have cared less. The classroom was very similar to Caylee's classroom which is directly across the hall. Awesomeness!!!! They also have a lot of technology in the classroom, and they even have there own occupational therapy room with a therapy swing! So far loving the program and teacher's! 

There is a little but more left to do for Jo Jo's Eligibility Evaluation. The school will be observing in January at Jo Jo's play group and they will also come and observe ABA Therapy. Then mid January we will have our Eligibility Meeting with the director, therapists, teacher's, early intervention, and us of course. The meeting will be our first IEP Meeting also, They will tell us he is eligible for the program and we will talk about his education plan. 

The director has already told us that Jo Jo is eligible because he has a diagnosis but they still have to complete there evaluation in full by law and they also get to observe Jo Jo which gives them a better picture of what they will need to be doing for him. Jo Jo will go to preschool four days a week from 9 to 11:30. The same time as Caylee which makes everything easier! I'm very excited for Jo Jo to start school. I think he is going to love it! He is a fast learner and I think he will fit in just fine. I am also very sad because my baby is starting school. It's going to be weird not having any kids in the house. Gonna miss my little man!

Sunday, December 8, 2013

There is a reason it is called a Safety Harness!



One of my biggest pet peeve's is when someone has to use a safety harness for there child, and people stair or make comments such as "why do you have your kid on a dog leash". Hhhmmm a dog leash what a awful way to describe someone who is trying to keep there child safe. I understand we all have our own belief's on parenting but is this mommy war necessary?

Every parent is different, every child is different, every situation is different. My situation is that I have a 2 1/2 year old son with Autism and he like's to wander, but most of all he run's! He also does not respond to his name. For us a safety harness is necessary for our Jo Jo.

I have once read and have been apart of conversation's with parent's and non parent's opinion's of a safety harness. Some people are very understanding and other people not so much. The excuses and reason's people come up with why a harness is bad is appalling.

Parent's have said thing's like "You should just put him in a stroller". Wow really how about my kid get some exercise and just walk with me. What's the difference, either way your child will still have a safety harness on. I have also heard comment's like "If you can't control your kid, then you shouldn't have had kids". Seriously!!! Who are these nasty mother's to judge my parenting!!!! I think the one that really light's a fire under me is when it is referred to as walking a dog, and last but not least "My child feel's like they have freedom when they can walk on there own". Ok well what toddler should have that much freedom? Your child could disappear in a second, no matter how vigilant you are. Accident's do happen even to the most cautious parent's.

I only want to protect my child, It's not cause I can't control him, it is because he has autism and doesn't understand what a normal developed toddler can. He doesn't understand walk with me, or don't run. The safety harness was designed for it's exact purpose, safety!

At Jo Jo's group I was talking to another mother who also uses a harness on her son. She uses it for all the same reason's as we do. She also expressed how hurt she get's when people stair at her or make comment's when they see her and her son with the harness. She said that times are already tough and the last thing I need is someone making me feel like a bad parent for using a harness, she is only trying to protect her son.

I guess the biggest point I want to get across is that you don't know everyone's unique situation and every parent has the right to use a safety harness if they feel it is necessary. Why bash another parent for protecting there child? Parenting is hard enough, if anything we should be empowering each other to be better parent's!


Thursday, December 5, 2013

Every Tuesday

Every Tuesday Jo Jo goes to a Sensory Processing Play Group at the Early Intervention center in Brockton. It's usually about a 1/2 hour drive from our house. If anyone knows Brockton, Ma it is a adventure just driving through. Keep your doors locked and be prepared to see something you don't see every day. This week I just laughed! I needed some humor in my day and when I watched a car make a right hand turn and the driver's side back door swung open and the lady in the back seat screamed and reached for the door and closed it, I just died laughing waiting for the light to turn green. Yup love Tuesday's driving through Brockton!

Play group is from 1:30 to 3:00, it usually ends 10 minutes early. We have been going for about 2 1/2 months and will continue going until Jo Jo turns 3 in February. The group changes all the time. Sometimes there is only 3 kids, sometimes it's up to 7 or 8 kids.

Jo Jo loves his play group. He really enjoy's going. Every time we go I let him walk in first and he marches down to the classroom and heads to the chalk board every time. It is going to be really hard in February when we stop going. Everyone we have met there have been awesome!!! When Jo Jo is in his play group there is a parent group that meet's and I have met some awesome mom's! We usually talk about what our kids have been doing, achievements they have been, and services we are receiving. It has been an amazing support group to be apart of.

Saturday, November 30, 2013

So Much to be Thankful for!!!!

Can't believe Thanksgiving is already over! We have so much to be thankful for this year!!! So thankful for our healthy children, and so thankful for our whole family! Most of all thankful that we live in a time with amazing medical and therapeutic professionals. Jo Jo has made such huge steps lately, the words are starting to flow, tantrums are getting better, and he is such a happy little boy!!!

Jo Jo has become very vocal, he is mimicking almost everything he hears. He almost sounds like a babbling baby at times, it is so cute! He can tell us if he wants a drink or if he is hungry. He has also become a very picky eater lately. He used to eat just about anything you fed him. Typical toddler!

We still have our busy schedule of almost everyday someone at the house or somewhere to go. But he is getting the best treatment! Everyone who has helped from Early Intervention, our doctors, and therapist have just been amazing!!! I am so bummed that we only have two months left of working with Early Intervention. When Jo Jo turns 3 in February he will transition to Rockland Public School's and Jo Jo will start school.

Jo Jo started occupational therapy on Monday, she gave us a temporary weighted blanket. We are testing it out for one week to see how he does with it. If he responds well to the blanket they have someone who will make us a blanket and our insurance will cover the cost. The first night seemed to go well, he stayed in bed all night, he was still in bed when I got up in the morning. Night two I did pick him up off the floor twice. Night's 3 and 4 he stayed in bed!!! I hope it stay's this way because it breaks my heart finding him on the cold hardwood floor. The occupational therapist think's the reason he may be getting up is the hardwood floor must be giving him some sensory input, because when he does get up he doesn't try to wake us up. We don't even hear him. The blanket is small, it just cover's him. It is very soft and has many little pocket's that have little bean bags in them for the weight. His blanket is 4 lbs. The blanket can also be very easily washed as long as you take out all the little bean bags first.

Every time Jo Jo makes the littlest step it is like the hugest accomplishment!!! He does things that make me laugh, love, cry and smile!!!

Yesterday was probably one of his sweetest moments. My Hubby Joe was half asleep on the couch watching movies and Jo Jo with his cup in hand opened his Dada's hand and placed his cup into his hand and said "me cup please" in his sweet little voice. It sounds more like "we up pease" but we knew what he wanted. That for us is such a huge accomplishment!!! He is much happier boy now that he can communicate with us! It is the littlest thing's that we are thankful for!!!


Tuesday, November 12, 2013

Our Top 5 Fun Idea's for Sensory Processing!

I am always looking for some fun activities for the kids and I to do together and I find sensory projects are always the most entertaining. I just wanted to share some fun Sensory Ideas I have found on Pinterest!!! We have also tried all of the example's listed and both of my kids love it!

1. Sensory Board's which can be made from item's found around the house and they are easily stored away in a shoe box or plastic bin. Just take some card board squares and let your imagination do the rest!!!
 sensory boards
2. Our 5 Senses! This one is also very easy to do and can be down with item's found in your home.
Sensorial Education: My Five Senses invitation - Playful Learning ≈≈ http://www.pinterest.com/kinderooacademy/sensory-play/
3. Sensory Balloon's! Fill each balloon with a different texture such as rice, flour, coffee beans, sand, or bead's. Very easy!
sensory idea - fill balloons with different texture items (rice, beans, beads etc) and let little hands explore!
4. Sensory Bin's! Thank you Mary for this awesome idea! Sensory bin's are easy and it is a lot of fun to do different themed bin's!
Harvest Sensory Bin - Back in the Hills ≈≈
5. Sensory Bottle's! Fill with anything! Colorful or noisy, let your kids shake shake shake!!!
Sensory Bottles

Saturday, November 9, 2013

Temper Tantrum VS. Autism Meltdown

The past week has been a looooonnnggg one! Jo Jo's tantrums have escalated to a new level for us. We have never seen some of this behavior so it has been shocking and stressful for us. I have been doing my own research and talking with out therapist's to get as much info and education as possible on this matter since it is such a huge safety issue!

We have come to the conclusion that it is not a Temper Tantrum it is a Autism Meltdown. There is a difference between the two. Majority of the time a Temper Tantrum is to gain some sort of attention, and the Autism Meltdown usually is because they are denied a certain activity, or a sensory overload. After that being said I have realized that Jo Jo is not having a Temper Tantrum he is having a Autism Meltdown.

Temper Tantrums

A temper tantrum is very straightforward. A child does not get his or her own way and, as grandma would say, "pitches a fit." This is not to discount the temper tantrum. They are not fun for anyone.
Tantrums have several qualities that distinguish them from meltdowns.
* A child having a tantrum will look occasionally to see if his or her behavior is getting a reaction.
* A child in the middle of a tantrum will take precautions to be sure they won't get hurt.
* A child who throws a tantrum will attempt to use the social situation to his or her benefit.
* When the situation is resolved, the tantrum will end as suddenly as it began.
* A tantrum will give you the feeling that the child is in control, although he would like you to think he is not.
* A tantrum is thrown to achieve a specific goal and once the goal is met, things return to normal.

FACT

If you feel like you are being manipulated by a tantrum, you are right. You are. A tantrum is nothing more than a power play by a person not mature enough to play a subtle game of internal politics. Hold your ground and remember who is in charge.A temper tantrum in a child who is not autistic is simple to handle. Parents simply ignore the behavior and refuse to give the child what he is demanding. Tantrums usually result when a child makes a request to have or do something that the parent denies. Upon hearing the parent's "no," the tantrum is used as a last-ditch effort.The qualities of a temper tantrum vary from child to child. When children decide this is the way they are going to handle a given situation, each child's style will dictate how the tantrum appears. Some children will throw themselves on the floor, screaming and kicking. Others will hold their breath, thinking that his "threat" on their life will cause parents to bend. Some children will be extremely vocal and repeatedly yell, "I hate you," for the world to hear. A few children will attempt bribery or blackmail, and although these are quieter methods, this is just as much of a tantrum as screaming. Of course, there are the very few children who pull out all the stops and use all the methods in a tantrum.Effective parenting, whether a child has autism or not, is learning that you are in control, not the child. This is not a popularity contest. You are not there to wait on your child and indulge her every whim. Buying her every toy she wants isn't going to make her any happier than if you say no. There is no easy way out of this parenting experience. Sometimes you just have to dig in and let the tantrum roar.


Meltdowns
If the tantrum is straightforward, the meltdown is every known form of manipulation, anger, and loss of control that the child can muster up to demonstrate. The problem is that the loss of control soon overtakes the child. He needs you to recognize this behavior and rein him back in, as he is unable to do so. A child with autism in the middle of a meltdown desperately needs help to gain control.
* During a meltdown, a child with autism does not look, nor care, if those around him are reacting to his behavior.
* A child in the middle of a meltdown does not consider her own safety.
* A child in a meltdown has no interest or involvement in the social situation. 
* Meltdowns will usually continue as though they are moving under their own power and wind down slowly.
* A meltdown conveys the feeling that no one is in control.
* A meltdown usually occurs because a specific want has not been permitted and after that point has been reached, nothing can satisfy the child until the situation is over.

Unlike tantrums, meltdowns can leave even experienced parents at their wit's end, unsure of what to do. When you think of a tantrum, the classic image of a child lying on the floor with kicking feet, swinging arms, and a lot of screaming is probably what comes to mind. This is not even close to a meltdown. A meltdown is best defined by saying it is a total loss of behavioral control. It is loud, risky at times, frustrating, and exhausting.

Thursday, November 7, 2013

The Tantrum Life

ABA Services has kicked off to a interesting and exhausting start. We started last week on Wednesday and so far I am loving the help we are getting. Marissa and Emmy Lou are so nice!!! Jo Jo is warming up fast and enjoys his time with them. It has been a challenge since we are not used to so many hours of service. For the first couple of week's it will be mostly fun and play time as they collect data to put together the correct programs for Jo Jo. The first week went very well.

This week on the other hand Jo Jo has done a complete 360 in the tantrum department. His typical tantrum usually consists of him throwing himself backwards and falling and he would cry for a minute and it would be over if left alone, usually if you would interfere with him he would tantrum longer. It's best to just let it run it's course as long as there were no safety concerns.

I have noticed in the last few weeks his tantrums have started lasting longer, he would sometimes try to get my attention, or he even get's more physical and will throw a toy or kick me if I was standing near him. I didn't think to much of it other than he is 2 1/2 they have tantrums, we will get through it.

After yesterday I realized I was wrong. Marissa was over for her scheduled time of 8 to 11. Jo Jo seemed himself that morning and he was happy to see Marissa and both kids were playing and having fun. Jo Jo was working on a alphabet puzzle. Just so everyone know's Jo Jo is obsessive with letter's and they all must go in order from A to Z. Anyway he was putting the letter's in order and Caylee tried to help and placed a letter in the puzzle but it was out of order. That's all it took. Jo Jo had the most explosive tantrum I have ever seen!!!

The tantrum lasted a good 15 to 20 minutes. He tossed the puzzle, he tossed himself backwards and hit his head. He got up and started running all over the living room crying and screaming and just tossing him self around. If there was anything in his way it frustrated him. He would kick it or throw it. At this point I was very concerned and I stepped in to try and console him which only enraged him more. He hit me in the face with both hands and arched back and kicked me. I knew at this point he was at his worst that I have ever seen. I got up to get his sippy cup and Marissa followed Jo Jo around to make sure he didn't hurt himself. Finally he calmed down when he got his cup and I snuggled him until he wanted to go play again. He continued to be easily irritated from the rest of the session.

We had a 4 hour break before the next ABA session which would start at 3:30 so we went out to do some Christmas shopping. Jo Jo is always so goof in store's. He sits in the wagon and doesn't say boo! It's like he is in a calm state of mind. We picked up lunch and headed home.

At 3:30 when Emmy Lou arrived I informed her immediately about our eventful morning with Marissa and she seemed extremely concerned. As we talked about addressing his tantrum issues and how to handle them and work on eliminating them and redirecting him, Emmy Lou told me she was going to have to provoke a tantrum. She had to see what was actually going on in order to come to a solution.

After our long morning it wasn't hard to provoke a tantrum. We started with a number puzzle and he was placing all the number's in order and Emmy tried hiding one of the number's from him so he couldn't put them in order and that was it the fuse was lit! Except this time the tantrum was in fact the worst and longest yet!!! It went on for a solid 30 minute's. He was hitting his head, throwing himself, throwing toys, crying and so on. The tantrum didn't end until he exhausted himself and he had nothing left. WOW!!! I was speechless!!! Emmy Lou expressed deep concern for Jo Jo's safety and she did tell me she was going to have to contact her supervisor and just let her know what was going on. She also told me they had some questionnaire's for me to fill out based on his behavior so we could find the underlying cause of these tantrums. for example if they were attention seeking, trying to escape from doing something, or a sensory issue. This would ultimately be the decision maker for the plan for treating and teaching other ways for him to react to situation's.

We ended the session with some fun play to keep him happy and it wasn't long before he was out like a light and he slept 13 hours last night!!!

Today's session was amazing!!! Not one tantrum today!!! Jo Jo was in good spirit's all day. Emmy Lou's Supervisor Michelle did come out to the house today to talk to us about Jo Jo's behavior and help explain what they do to find out why this is happening and how we can work on it. We also completed our questionnaires to find out a possible reason why he is doing this. Majority of the time the tantrums start it because he is not getting what he wants. It is less likely attention seeking, and more so because he may not want to do something we or he is doing. and least likely a sensory issue which is a huge relief!!! If it was due to a sensory issue it is much harder to work on and correct. It would also mean that he like's hitting his head. Thankfully that is not the case.

Well I am one exhausted Mama!!!




Saturday, November 2, 2013

Halloween was Awesome!!!

Jo Jo had an amazing and fun Halloween!!! We had ABA in the morning for 3 hours, and Jo Jo's sister Caylee had a fun day at preschool. Caylee had silly hat day and chose to wear her pink princess hat, not surprised LOL! She came home wearing pink butterfly wings, I have no idea where they came from. I brought them back to school and Caylee's teacher told me that Caylee insisted that she was a butterfly LOL! She is something else.

It was our first time taking the kids Trick or Treating! They both had so much fun and really enjoyed it. We used our wagon for Jo Jo. Caylee insisted on walking. We probably went to about 20 houses on our street. Every time we stopped at a house Jo Jo through his leg over the wagon and climbed out and ran up to every door and knocked with his little finger. It was so cute!!! Sometimes he waited for the door to open, sometimes he turned away and ran back to the wagon and climbed back in. Caylee waited patiently and said "Happy Halloween & Trick or Treat". Then off to the next house. It was fun for all of us!!!

Both kids were exhausted and sound asleep in bed shortly after we got home. Couldn't have asked for a better night!

Wednesday, October 30, 2013

One of the longest Days!

I didn't need the alarm clock this morning, Jo Jo had me up just before 7 am. I had no choice but to get up and get moving as today was going to be the longest day this week. Jo Jo climbed in bed with his Da Da and snuggled up next to him sitting in the same position as his Da Da, arms up and hands behind the head and laying back on the pillow. Like father, Like son.

Today was our first day with ABA Services at home. Every Wednesday Marissa will be working with Jo Jo from 8 am to 11 am. When Marissa arrived Jo Jo greeted her with his big smile and saying hiiiiii! I was so happy he greeted her at the door. It is something he recently started and it seems to be sticking with him. He is so social with adults, if only I could get him to act that way with other kids his age.

The first visit is mostly for Jo Jo to get to know Marissa and bond with her so when we do get working he will be familiar with her. Jo Jo did very good with Marissa today, he did have a few moments of frustration but he was able to overcome it quickly. The 3 hours passed fast and Jo Jo seemed tired after the visit. If only he would nap!

I must have been a little insane when I planned this day out, after Marissa left, I had scheduled Verizon Fios to install service from 11 - 2, and then more ABA services by Emmy Lou from 3:30 pm - 6:30 pm, oh did I mention I had to be to work at 4, Joe had to be to work at 7? yup!

I only got to meet Emmy Lou for about 10 minutes before I had to leave, she was really nice and Jo Jo warmed right up to her. He just dropped himself right into her lap. It was so cute!

More ABA tomorrow with Emmy Lou from 11:30 to 2:30, then prepping for Halloween!!!!!!! This is the first year we are taking the kids trick or treating! We have some friends coming with us with there kids too. Happy Halloween Everyone!!!!!

Tuesday, October 29, 2013

ABA, Eating, and Weighted Blanket's!

I am very excited for ABA to start tomorrow! Both therapist who have been scheduled to start with Jo Jo this week have both called and introduced themselves and confirmed time and place. They both sounded very nice over the phone, and maybe sounded kinda young too, but that's okay. I just can't wait to work on some thing's with Jo Jo that need improvement.

Jo Jo has been regressing with eating which is kinda freaking me out. He suddenly has issues with using a fork and spoon, he is having complete tantrums if you give him any food that will involve using a fork or spoon. The tantrum's are so hard to watch, he throws himself on the floor and kicks, cry's, and screams. He will sometime's start with just pushing the food away, or pushing my hand away while shaking his head no, and then it turns to crying on the floor. Our Developmental specialist at first thought it could be just be his age, first thought maybe he is just getting picky with food as toddler's do get that way. He typically has no problem with finger food's at the moment. He will still eat but only with his finger's. I have been doing mostly finger foods for the past week, I'm hoping tomorrow ABA can help us figure out why he is doing this.

Yesterday our Developmental Specialist Nicole was over for a visit with Jo Jo, He was in a extremely good mood, and had Nicole laughing the whole time. We also had out Speech Therapist Jenn over at the same time and she even said I have never seen him this happy. This is Great!!! He said a lot of words yesterday, and did a lot of great mimicking!

I'm not sure how many people have heard of this, but I was considering buying Jo Jo a weighted blanket. He has had success with a weighted vest in his play group so I really do think a weighted blanket would really help. I asked Nicole about it because I wanted to make sure it would be right for him before we made such a large purchase. Weighted blankets have been known to help calm you down, they help promote more restful sleep, and helps decrease anxiety. Jo Jo has had some issues lately with bed time. He is tired but fighting to stay awake. He won't stay in bed most night's when I put him to bed. He also sometimes wakes up around 4 am and will wake me up, or he will fall asleep on his bedroom floor. I occasionally will wake up in the morning and he is sound asleep on his bedroom floor. He stopped napping a long time ago when we switched to his toddler bed. I am wondering if the weighted blanket will help him sleep better and then maybe he will have less tantrums and hopefully we will have better success at dinner time too!

Nicole told us that she is going to contact our Service Coordinator and refer us to a Occupational Therapist, and the therapist will then come out to our home and evaluate Jo Jo and decide if a weighted blanket will be right for him. She told me if I can wait through this process which does take a little time to set up we can get a weighted blanket for free!!! Nicole told me that BAMSI (Early Intervention) has a lady who hand makes the blankets and that our insurance will pay for the blanket! It is well worth the wait! Weighted Blanket's start at around $75 and up!!!





Saturday, October 26, 2013

Your Child’s First and Best Advocate: You

Your Child’s First and Best Advocate: You

There are a million and one things rolling through my head about Jo Jo starting school in February. First things first it scares the heck out of me!!! I have so many questions, so many thoughts, and fear. I have heard so many horror stories about school's and advocating for your child. I have seen it first hand, and I read so many stories of other experiences about IEP (Individualized Education Program) meetings and school.

I keep getting told that I am the best advocate for my child. Am I really? I know that I am supposed to know what is best for my child but I am not a professional either. I don't know everything. Who does anyway!?!

There are so many stories out there that are just horrifying. School's not providing services that they should, parents being told that there child is not on the spectrum, and children bouncing from school to school. How can a school tell you your kid is not on the spectrum? Especially after being diagnosed by a doctor. Talk about toying with a parents emotions. Sure we all want to hear that our kids are normal and are not autistic, but I seriously do believe a school has no place making that determination or that decision.

How does a school get away with the things that they do?! I hope I am able to fight these battles and do the right thing for my Jo Jo.

Thursday, October 24, 2013

Looking forward to the future!

Today I actually got to blow dry my hair! wow been a wile since I have had the time to do it. I usually toss it up in a pony tail and throw my yoga pants on. It was the boost I needed though, got many compliments on how great my hair looked. Sometime's it's the little thing's that keep me going. It's just a little piece of encouragement!

My hubby and I took the kids to the park yesterday morning to get some fresh air and burn off some energy! Jo Jo's behavior at the park has improved so dramatically I couldn't believe it!!! His typical behavior at the park was to climb all over the jungle gym, he would climb up and down the steps, he loves the slide, but then he would end up running around with no purpose and he would have his head turned to the side. He even sometimes would run right into the fence because he does not pay attention to where he is going. He would become unfocused. Well he sure showed us at the park. Jo Jo played the entire time we were there. He stayed focused and continued to play the whole time. We didn't have any random running and wandering, he even had no problem leaving the park. He transitioned so well!!! He really impressed us!!! Jo Jo is still not showing any interest playing with other children but we will get there.

Starting next week we will be the busiest we have ever been. Every Monday we have our Developmental Specialist coming over to work with Jo Jo for 1 hour. Jo Jo has really started to like her, her name is Nicole. She is so nice, but yet she is so tough with him which I love. She doesn't let him get away with anything! She really show's tough love!

Every Tuesday we have our Sensory Processing play group which Jo Jo loves, he marches right into the classroom, and forgets that I'm even there. he really is so independent.

finally our ABA services will be starting this upcoming Wednesday! We have two session's scheduled for every Wednesday 8am - 11am and then 330pm - 630pm, and every Thursday we will have ABA from 1130am - 230pm. That's 9 hours a week of ABA! I am so looking forward to meet everyone and get started! I have such high hopes for Jo Jo and can't wait to see what improvement's and challenges he can achieve and overcome!!!


Tuesday, October 22, 2013

Finally some good news!!!

I have been so stressed out since last week when I received a letter from our insurance company stating they have denied a claim for enhanced autism services from Early Intervention. I wanted to freak out and scream, I didn't understand why I would be getting this letter. We have a HMO and have never had any trouble with anything being covered. I was thinking Oh my god, there is going to be a huge bill coming, or services are going to end, I thought do I have to get a lawyer, is this even legal? It was Friday also so I thought to myself it's okay we will figure this out on Monday no need to freak out, we can always appeal this decision.

After thinking all weekend long about this letter I just wanted to Burn, I remembered that my service coordinator had told me we will never see a bill.

Well after visiting Early Intervention today for Jo Jo's Sensory Processing Group, I stopped at the billing office and presented the letter and after the very friendly billing lady looked up our case she looked at me with a smile and told me the that DPH has picked up the bill. WooHoo!!! That was a huge weight lifted off my shoulder's!!!

Thursday, October 17, 2013

ABA Intake

This morning was our ABA intake appointment. Laura from Beacon ABA Services was so nice and the appointment went very well and we called them just in time because they only have two open spot's available so I took it! We will be having our ABA evaluation on Monday morning so they can see what Jo Jo can and cannot do. They gave me some homework to do also. Not fun stuff either just paperwork.

So Starting next week we will have Emma from Beacon ABA services visiting us every Wednesday from 3:30 to 6:30 and every Thursday 11:30 to 2:30. I also learned that the ABA services will end when he turns 3 in February. There is so much information, so much to remember, and very little time to do it!

Wednesday, October 16, 2013

Switching Gears!

Today was our Transitional Conference with our service coordinator and the Early Childhood Coordinator from Rockland Public School's. It was mostly a informational session for both the school, early intervention and myself. I was not sure what to expect but I did not think that it would be such a long process. I had the idea he would have a simple evaluation and because he has a diagnosis he would be entered directly into there program. Wrong! LOL!

First thing's first, we have to give consent for early intervention, the school, the doctors, and myself to be able to all communicate about Jo Jo legally.

The next step which should start in Early December will be the evaluation process which entails the following: The school will send there professionals and therapists out to our house when Jo Jo has his ABA services so they can observe, they will also be joining us in our play groups, and other therapy sessions that we have so they can observe. In the mean time they will also schedule us for evaluations to be done in the school, and they will also invite Jo Jo into the preschool classrooms to see how he does with other children in the classroom setting.

The last step in the process will be in January, another meeting called a Eligibility Evaluation. We will then discuss what was observed, if he qualifies for the services the school has to offer. We will also talk about his strength's and weakness', and what essentially Jo Jo needs in order to succeed.

With that being said we still have a lot to do before Jo Jo can start school in February when he turns 3.


Tuesday, October 15, 2013

Service's & More!!!

At this moment Jo Jo has Early Intervention Services, he has a therapist visiting every Monday at home, and Every Tuesday we go to a sensory processing play group at the Early Intervention Center in Brockton.

Tomorrow is our Transitional Conference which I have been getting very excited for!!! At this meeting will be our Service Coordinator from Early Intervention and someone from the special education department from our public school's. The purpose of this visit is to start the transition from Early Intervention to Public School. From what I understand they will be evaluating him tomorrow to see what his needs are and to make sure they can accommodate to his needs at school.

When Jo Jo turns 3 in February Early Intervention ends and he will be starting school. All his therapy will be done at school, he may also still get some home services along with his schooling.

I am very excited about Jo Jo starting school, but I'm also sad cause he is my baby. I guess one of my own challenges is letting him go and treating him more like the big boy he is. I baby him way too much!!!

After our meeting tomorrow we are getting Flu Shot's!!! Jo Jo will be getting the shot, they said he can't get the mist because it could provoke an asthma attack. nope don't need that! Caylee will be getting the mist. She loves the doctors office!

We also got a phone call from Beacon ABA Services today and they will be visiting on Thursday to evaluate Jo Jo for more ABA services. Which means will will have more home therapy added to our schedule!!!

So far the only day off I have this week is Friday!!!



Thursday, October 3, 2013

What is Autism Spectrum Disorder?

Autism is a spectrum disorder characterized by difficulties in three primary area: communication, social interaction and repetitive behavior. Early treatment can help your child make remarkable progress. The sooner you start the better since the early years are among the most important in a child's development. Autism is a complex developmental disability that typically appears during the first three years of life and affects a person’s ability to communicate and interact with others. Autism is defined by a certain set of behaviors and is a "spectrum disorder" that affects individuals differently and to varying degrees. There is no known single cause of autism, but increased awareness and funding can help families.

Know the signs: Early identification can change lives
Autism is treatable. Children do not "outgrow" autism, but studies show that early diagnosis and intervention lead to significantly improved outcomes.

Here are some signs to look for in the children in your life:

*Lack of or delay in spoken language
*Repetitive use of language and/or motor mannerisms (hand-flapping, twirling objects)
*Little or no eye contact
*Lack of interest in peer relationships
*Lack of spontaneous or make-believe play
*Persistent fixation on parts of objects

Starting Line!

Joseph Michael Chavis better known as Jo Jo's is a very sweet soft spoken 2 1/2 year old toddler. He loves to play with his cars and trucks, he loves to count to twenty, he loves singing the alphabet, and he loves playing with his sister. He also enjoys running, going to the beach, and playing in the sandbox. Last week our Jo Jo was diagnosed with Autism Spectrum Disorder, better defined as Autistic Disorder. I do have to say that I was not at all surprised. When we arrived at the Developmental Pediatrician's office for our parent conference with our doctor I already knew he was going to be diagnosed with Autism. When we sat down and talked about Jo Jo's I just said okay when she told me he has Autism. The doctor looked at me and said are you okay? I said I'm fine I was expecting it. Our doctor was very optimistic and reassured us that with all the therapy and services out there Jo Jo will be okay. His therapy will be intensive and structured. Any lapse in therapy can cause him to regress so I have to be on my A Game! The doctor suggest's 20 hours a week of home therapy. This should be interesting!